Help protect our kids from restraint and seclusion discipline methods #noRS

I’d heard the terms “restraint and seclusion” but never dug deeper to learn what they meant. Then I wrote about it for, and the knowledge has been life-changing. Restraint and seclusion methods originated as tactics to defuse a bonafide safety threat: a child threatening his/her own safety or the safety of others. But along […]

Recognizing *our* mommy worth

The thing that gets me all the time about having a child with Down syndrome is that I never, ever, ever feel like I’m doing enough for him. That probably won’t ever go away. Then there’s my “typical” daughter Emma isn’t yet two and remembers the swim instructor’s name from one week to the next […]

Tough day on the playground… for Mom

I stood at the highest point of the sloping wood-chip-blanketed playground, able to see both kids running, laughing and playing. Hands on hips, sunglasses on head and a smile across my cheeks. I loved every moment of watching Charlie and Emma have fun. Ninety-degree scorching days had finally surrendered to a burst of unexpected coolness. […]

Class picture breaks mom’s heart; Charlie turns 3 and… hippos?

It’s been an emotional week at SheKnows and allParenting! Here’s a cheat sheet on the infuriating, heartwarming and FUN articles that posted this week: allParenting let me tackle a trending story about a little boy and his wheelchair, set apart in his class picture but leaning eagerly toward his classmates. It made me so mad! […]

Ethan Saylor’s sister speaks out in The Washington Post

Tonight, my heart is bursting with pride over Emma’s strength, determination and accomplishment. Nope, not my Charlie’s Emma. Ethan’s Emma. (Perhaps everyone should have a sister named Emma?) Robert Ethan Saylor was an individual with Down syndrome who was killed five months ago this weekend. His family still has no resolution. No one has been […]

A big decision about prenatal testing and a spotlight on D.A.D.S.

I tell you what, our house is like a sick ward lately. But in between the puke and snot, we’ve had several moments of true joy. We’re expecting no. 3, and over at allParenting, I wrote about choosing not to undergo prenatal testing this time. We had a prenatal diagnosis of Down syndrome for our […]

Charlie the Cheater: Charming the school system

When Charlie was in the NICU, the nurses and I jokingly called him “Charlie the Cheater.” He had a feeding tube and looked upon nursing or feeding from a bottle as an unnecessary exhaustion. “Look, Ma, I got this covered,” he seemed to say to me with his big blue eyes. Well, old blue eyes […]

A veteran mother’s plea: In the wake of Ethan Saylor’s death, demand training of all law enforcement

Introduction from Maureen Wallace,  rookie mom of a child with Down syndrome   At least once a day since Robert “Ethan” Saylor died in January, I have thought about how my son, Charlie, could face a similar fate. Charlie has Down syndrome, just like Ethan. Many other parents of children with Down syndrome have written […]

WHY do national Down syndrome organizations refuse to collaborate?

WHY do national Down syndrome organizations refuse to collaborate?

One week ago, allParenting published my column titled, “Down syndrome organizations: Unite! We need you!” It was a small contribution to the steady drumbeat of outrage and concern after the death of Robert “Ethan” Saylor, a young man with Down syndrome who died while being restrained by three off-duty sheriff’s deputies in Frederick, Maryland, in […]

I kept our secret pretty well for almost two years…

I kept our secret pretty well for almost two years…

And then I saw the post. A friend from our local Down syndrome association had posted on Facebook that she was looking for a caregiver for her children, one of whom has Down syndrome. I knew it was time. I knew we had to give another precious little boy the opportunity to be nurtured by […]